Its now been a while since the last update. We seem to be getting into a bit of a routine. The day starts with breakfast which is now taken at the table. Before the OP I was taking breakfast into Brenda. Now she gets up and showers then joins me for breakfast. It’s great to have her at the table in the mornings but I think she would like me to bring her breakfast in bed sometimes. I guess we all would like to have it brought to us.
I then give her, her morning medications. This varies as she has an antibiotic two mornings a week. This is to fight off some rare bug that patients on chemo are susceptible too and is particularly nasty. Then it’s her injection.
It then depends when her Radiotherapy appointment is as to what happens next. If she has a morning appointment I usually sign on to my work quickly, check my mail then off we go to Radiotherapy. It usually takes just over 30 mins to get to the clinic. We have been lucky as the clinic has just expanded and it has its own car park. We have been able to use the car park even though the building is still being completed.
The treatment lasts about 15 to 20 minutes then it’s off home we head. The staff at the clinic is wonderful. The girls in the treatment room are very caring and take the time to get Brenda settled on the treatment table and line up the mask and machine. The treatment desk receptionist then checks the appointment already made then makes an appointment for the next week. Every day we get an appointment for the following week so we know a week at a time when they are. They vary a bit as they are always slotting new patients in and others finish their treatments. The girl who does the appointment is very tolerant with the clients and tries to give them times that suit them. Every Tuesday we see the Doctor at the clinic. He checks to see if every thing is going along OK and also checks the results of a blood test we have fortnightly.
Then comes the best part of the day, the drive home.
Why is it the best part of the day?
We treat ourselves to a coffee on the way home. We go to one of several drive-through coffee places or I get a takeaway from one of the cafes. Then we take our coffees down to one of the car parks along the beach. Sometimes we will stop in one of the bush parks and watch the world go by. This is a very relaxing part of the day. Then off we go home.
If the appointment is for later in the day I end up doing some work before we go. We prefer the morning appointments as it gives Brenda a chance to come home and relax on the bed in the afternoon. I try to get her to relax by putting on a CD of calming music.
If she doesn’t go to sleep she will knit. Brenda has several different things on the go at the moment from feather wool items to finer wool garments so she will do a bit of each for some variety.
I will continue to work and give her her chemo tablet about 4 o’clock. When I finish work its dinner time and one of us will make dinner. Everyone has a go at getting dinner and I think we are surviving very well. It’s more medication at dinner time then a couple of panadol to go off to sleep.
Last week we saw the surgeon for Brenda’s Post Op checkup. He was very pleased with her progress as it was a definite improvement on her Pre Op condition. Brenda asked if the tumour could grow back. He replied that it could and most probably would grow back and depending how it was situated he could operate again if required.
This news really hit home for Brenda. She left the doctors in tears. We were driving home on the freeway both of us sobbing away not knowing what to do. We headed for the Lakelands Christian Centre hoping Pastor Patti was there. Pastor Murray was there and he spoke to us both and he prayed for us. We left there and went home feeling a little better but still in a bit of a daze. Latter in the day Pastor Patti came and we spoke for quite sometime. When we saw the Radiotherapy doctor today he put it a little more comforting. He suggested we see how the treatment goes and then see if the size of the remaining tumour is still the same size as it was post op or had decreased. If that is the case then enjoy each day but watch for signs of any regrowth. He would still continue some form of treatment while ever it helped.