Brenda’s Progress #17

Well Christmas is only days away.

This year we are looking for a miracle in Santa’s sack.

Brenda had an MRI scan at the beginning of December. The results are not good. The tumour has regrown almost to the size it was pre-operation and has invaded other parts of her brain. The Chemo Oncologist gave us the results and also said that the tumour was not responding to the Chemo. He said we should stop chemo and let the palliative care people make life as comfortable as possible. Brenda felt that things were not going well up to the scan and this proved to be the case.
We left the Chemo Oncologist and went to see the surgeon. The surgeon had the same news. He would not attempt to remove any more of the tumour as this would do more harm than any good as this time he could not follow up with Radiotherapy. Brenda received the maximum dose of radiation the first time. Any further radiation would damage the brain.
We came away quite depressed; the prospects are now NOT good. The tumour is quite aggressive and it is only a matter of time before it takes over.

I have dreaded having to write this update. I thought I could just sit here and let it roll off but it’s not coming.

Well I guess I should continue as I started and just tell you what Brenda has been up to.
Last Sunday we attended Carols by Candlelight at a park in Yangebup (a Suburb nearby). The Carols were put on by our church along with several others. Well can someone tell the weatherman that is now summer and you don’t go to Aussie Christmas Carols in you overcoat, scarf and beanie. It was quite cold at the Carols, we had taken some folding chairs but Brenda needed a rug. Friends from church were sitting beside us and they had a quilt on the ground for their young lad to lie on. I remembered I had a lined picnic rug in the car so we swapped the rug for the quilt and Brenda and my Mum snuggled up under it.
My Mum arrived the day before flying in from Parkes in NSW.
She had to get a commuter flight from Parkes in the middle of New South Wales to Sydney. She then boarded a Virgin flight from Sydney to Perth. The Parkes-Sydney flight is an hour then about an hour and half in Sydney then the Perth flight takes 5 hours. It is great to have Mum here.

Brenda is still able to walk with the use of the walking frame. We like to keep an eye on her as she is losing strength in the left arm and leg. The pain is mostly under control as the nurses have been fine tuning her medication. Brenda is still able to laugh and has been entertaining her visitors well.

Christmas will be here at home with Brenda’s Mum and Dad and brother Keith coming up from Collie for the day. Brenda’s other brother, Brian will come over with his partner Dale. Brenda’s nephew Brad and his partner Teegan will come up from Collie on Christmas Eve and stay for Christmas lunch then go to Teegan’s parents at Peaceful Bay down south. On Boxing Day Brenda’s niece and her partner Dean and son Ryley will join us. My Mum will be here as well.
We will enjoy Christmas as best we can as we enjoy each and every day.

God Bless
Love Steve

15 thoughts on “Brenda’s Progress #17

  1. Brenda,Steve,
    How does one reply to such sad news. My heart goes out to you along with my love and prayers. As you said, Steve, live each day to the full and enjoy as much as possible the precious time you have left.
    With love Laurentia

  2. Dear Bren,
    I thank the dear Lord for the chance to meet you even if it was not in person. You have been a wonderful friend to me over the last two years. My little teddy will be a constant reminder of our friendship and during the chilly Tasmanian winters your kind gift of my feather beanie, scarf and mittens will warm my outside like your love and friendship warmed my insides. You are one of a kind and a truly deserving person of many wonderful things which I’m sure God will bestow upon you. From reading all the messages that people have left you I can see that you are truly loved and blessed to have so many caring people around you. Steve you are an angel in disguise I’m sure. Your love and strength has been an inspiration not only to me but to many others around you I’m sure. Try to enjoy Christmas as much as possible as it is a special time for families to come together. You & your family will be in our thoughts and prayers now and always and especially Christmas Day.
    I have spoken to Kelly and whilst she is off the net at the moment I know she would want me to send you her best wishes also along with loads and loads of love, hugs & kisses. You were a great support to her when she fought her battle and I know she wishes she could get back over to WA and be with you right now.
    Ok so that will end my essay for today. Keep your chin up my dear friend and remember that I will always be thinking of you, will always love and admire your courage and spirit and will always remember you with a smile.
    Love now and always
    Margie & Family

  3. Hi Aunty Brenda, Uncle Steve, Rob & Sarah,

    Love ya’s all, see you boxing day.

    Love Niece Christine, Dean, and special little grat nephew Ryley xoxoxox

    Big hugs Great Aunty Brenda love you lots and lots Ryley xoxoxoxoxoxoxo

  4. Hi

    My name is Terresa and I am a good friend of your niece Christine. I just wanted to say your whole family is extraordinary. My heart goes out to you all. I know how special you all are to Chris she speaks so highly of you all. There is so much I want to say but finding the words is proving difficult. Wishing you a Merry Christmas. Mine and my families thoughts will be with you.

    Love
    Terresa, Paul Asha and Brianah

  5. To Brenda And Steve,
    Although we have never met,we just want to let you both know how much you are in our thoughts at the moment.Although we are 1000s of miles away,always remember if you ever need us we are only a phone call away.
    May you always have gods blessings with you
    With much love to you and all your family
    Vicki and Elio Laveni

  6. Dear Brenda

    You have been a wonderful friend to me for over 3 years and I value that friendship immensely. Two years ago, come this January, we were able to meet in person. It is like we have known each other all of our lives. I know I am a better person for knowing you. You have given many people the gift of your friendship and support through our times of need.

    I know how important this Christmas is for you and your family as it is a special one for me and my family, also. My father was diagnosed with cancer of the oesophagus a few months ago. Ten days later the surgeon found another tumour between his pancreas and liver. They cannot operate so he is having chemo. He has just finished his second round and we won’t know how successful it has been until after the third round. Like you, we are taking it one day at a time and making the most of each day.

    Love and hugs always

    Sue XXX

  7. Dear Bren and Steve…it’s hard to say how sorry I am for all you are going through. I just hope through all this hardship, you can find the true joy in Christmas, being with your loved ones and knowing how much you truly are loved by so many.
    I send my biggest, best wishes and prayers for you, and I just wish you all my love this Christmas and New Year, and may that miracle find the most deserving of people.

    Love from Lisa

  8. I am sorry to hear that Brenda is ill, as you may know Ros and I parted 12 years ago so I have not had any news from down under. I have remarried and now living in Wales.
    Peter phones me today and gave me your web site.
    I will pass this info on to Ros.

    I will be thinking of you on Christmas Day.

    Love
    Mike

  9. Michael phoned me on Christmas Day and gave me your terrible news. You probably do not know who I am but I knew Bren in the late sixties, when were Nannies in London then, as happens Bren went to Australia and I got married. Eventually contact was lost. I have explained to Rob (son) and Rachel (Daughter) and we are all thinking of you, sending our love, thoughts and prayers.
    Our love,hope and wishes

    Ros, Robert, Fiona(Robs wife), Rachel and Tony (Rachels husband)

  10. Hi everyone,

    yesterday myself my partner Dean and our son Ryley, went to Perth to see Aunty Brenda, Uncle Steve, Rob,Sarah and Uncle Steve’s mum June. We enjoyed our day together with many a laugh shared by us all, Uncle Steve and Sarah prepared a beautiful lunch for us and it was great to all sit around the table together. Of course we where all spoilt by them with Christmas gifts and might I add Aunty Brenda always seems to find ‘noisy’ little trinkets for Ryley!!!This time she managed to find a bubble blowing fire extinguiser and ‘yes’ it makes the noise of a fire engine!!! Not forgetting the ‘noisy’ fire engine that fires foam balls, our little Ryley was truly spoilt but does love his ‘noisy’ pressies. They also had a fire suit made for Ryley out of an old fire jacket that was my dads, this little suit was made by Aunty Brenda’s friend Kylie and is sure to be a family keepsake for many years to come.

    A big thankyou to you all for making us so welcome, we truly cherished our Boxing Day with you all and will remember it forever.

    Love to you all

    Christine, Dean and Ryley xoxoxox

  11. Hi guys,
    I’ve followed this all along and never been able to say anything. I just want you all to know that you are in my thoughts daily – words just don’t seem to come that easy. You are all in my thoughts, now as always,but you knew that already, huh?
    hugs,
    Lyn

  12. Hi Bren,Steve,Robert and Sarah.

    You are all in my thoughts and prayers daily. I read you had a fun Christmas day with the younger members toys making lot’s of noise and watching thier re-action.Love to you all across the world.
    Karen
    UK
    xxxx

  13. Hi Brenda and Steve, Robert and Sarah

    Thanks for the up-date, looks like you all had a very special time over Christmas!
    Just wanted to let you know you are all in our thoughts – often. Coffee sometime?

    Love

    Vaughan and Roseanne

  14. Hello Brenda,Steve,
    Thanks for the update Steve. Have been wondering how Bren was doing lately. Great that you had a terrific Christmas – lots of good food,family and friends (and noisy toys). Hope to get down to see you shortly, if that is ok.
    Lots of love and prayers to you all.

    Laurentia

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